My son Joseph was born on the 17th July, 2012. He was in respiratory distress so he was taken to the NICU for further management. When he got to the NICU, he was further distressed and had to be placed on the ventilator. He was then diagnosed with PPHN.
I thought that it was just the respiratory problem, but unfortunately there was more to his diagnosis. This doctor was the endocrinologist. He informed me that results from the blood tests indicate that his hormones were low, however they continued further testing which confirmed that he has Hypopituitarism, which will cause him to be on medication for the rest of his life. I was astonished; all I could ask myself is why?
Joseph continues to recover; we realized that he was a very poor feeder, and the Doctors continued treatment and used different feeding strategies. Just to see if he would feed better but did not succeed. The doctors spoke to me about placing a gastrostomy tube otherwise known as a G. tube for Josephs. The date was set and the surgery was done successfully, thank God.
Joseph eventually stayed a total of four months and two days in the hospital. He was released on the 19th November. For the duration of Joseph s ongoing treatment, I was blessed enough to reside at the Ronald McDonald House of Fort Lauderdale. The volunteers and staff members have graciously embraced me during this difficult time in my life. I would recommend this organization to any parent in need of a “Home Away from Home”. Thank you Ronald McDonald for all that you have done for me and my King Joseph.
Danette L. Ricketts, Joseph’s mother